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0 Replies and 69 Views Release of HICDEP 1.100 and transfer of management to CHIP  69  0 Started by  SuperUser Account Dear all, Version 1.100 was released on August 7 and it includes changes that has been discussed with our collegues in IeDEA over the last two years. Furthermore, the management of HICDEP has now been transfered from the Swiss HIV Cohort to CHIP in Copenhagen. I would like to thank Bruno Ledergerber for his many years of excellent leadership and engagement, as I humbly aspire to follow his example. From CHIP, Casper Frederiksen (previous datamanager in COHERE) and the...
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21 Aug 2017 12:00 AM
4 Replies and 127 Views Branded or generic drugs  127  4 Started by  SuperUser Account Hi everyone, In the ART-CC we would like to identify whether ARV drugs being taken by patients were branded or generic. We are aware of a handful of cohorts who collect this information, but cannot see a way in HICDEP to capture this information in data transfers. If any cohorts collect these data could you let us know what format it is in Or if anyone has any suggestions for collecting these data in a harmonised fashion then that would be useful as well. On a phone call with Monique and ...
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by  SuperUser AccountJump to last post
18 May 2016 12:00 AM
1 Replies and 54 Views tbl LAB_RNA  54  1 Started by  SuperUser Account If there is a value in tbl RNA higher than the upper limit (>750000 for example) you can’t describe this. For lower Limit there is -1. So in this case you have: rna_v : 750000, rna_ul: 750000. But you don’t see the real value is >750000.
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by  SuperUser AccountJump to last post
07 Dec 2015 12:00 AM
0 Replies and 35 Views tblNEWBORN_ABNORM - Information about abnormalities (7)  35  0 Started by  SuperUser Account Dear All This is the seventh topic with discussions of tables related to pregnant women and pregnancy outcomes in view of potential inclusion of some of the tables/variables in the IeDEA data harmonization efforts. Please see http://www.hicdep.org/wiki/Hicdep_1.100/TableNewbornAbnorm for the current version of this table. BM suggests to consider the use of the key field CHILD_ID Patient ID of the child ABNORM_T Type of abnormality plus the field ABNORM_S...
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26 Nov 2015 12:00 AM
0 Replies and 40 Views tblNEWBORN - Information about newborns(6)  40  0 Started by  SuperUser Account Dear All This is the sixth topic with discussions of tables related to pregnant women and pregnancy outcomes in view of potential inclusion of some of the tables/variables in the IeDEA data harmonization efforts. Please see http://www.hicdep.org/wiki/Hicdep_1.100/TableNewborn for the current version of this table. BM suggests to consider the use of the key field CHILD_ID Patient ID of the child plus the fields BRFEED_SD Breastfeeding start date BRFEED_ED...
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25 Nov 2015 12:00 AM
0 Replies and 44 Views tblDELIVERY_CHILD - Delivery information related to the child(ren) (5)  44  0 Started by  SuperUser Account Dear All This is the fifth topic with discussions of tables related to pregnant women and pregnancy outcomes in view of potential inclusion of some of the tables/variables in the IeDEA data harmonization efforts. Please see http://www.hicdep.org/wiki/Hicdep_1.100/TableDeliveryChild for the current version. BM suggests to consider the use of the key fields MOTHER_ID Patient ID of mother of child CHILD_ID Patient ID of the child plus the fields DELIV_D D...
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24 Nov 2015 12:00 AM
0 Replies and 40 Views tblDELIVERY_MUM - Delivery information related to the mother (4)  40  0 Started by  SuperUser Account Dear All This is the fourth topic with discussions of tables related to pregnant women and pregnancy outcomes in view of potential inclusion of some of the tables/variables in the IeDEA data harmonization efforts. Please see http://www.hicdep.org/wiki/Hicdep_1.100/TableDeliveryMum for the current version. BM suggests to consider the use of the three key fields MOTHER_ID Patient ID of mother of child PREG_SEQ Sequence number of the pregnancy for the specified mot...
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23 Nov 2015 12:00 AM
0 Replies and 35 Views tblPREG_OUT - Pregnancy outcome (3)  35  0 Started by  SuperUser Account Dear All This is the third topic with discussions of tables related to pregnant women and pregnancy outcomes in view of potential inclusion of some of the tables/variables in the IeDEA data harmonization efforts. Please see http://www.hicdep.org/wiki/Hicdep_1.100/TablePregOut for the current version. BM suggests to consider the use of the three key fields MOTHER_ID Patient ID of mother of child PREG_SEQ Sequence number of the pregnancy for the specified mother ...
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22 Nov 2015 12:00 AM
0 Replies and 41 Views tblPREG_OBS - Obstetrical problems during pregnancy (2)  41  0 Started by  SuperUser Account Dear All This is the second topic with discussions of tables related to pregnant women and pregnancy outcomes in view of potential inclusion of some of the tables/variables in the IeDEA data harmonization efforts. Please see http://www.hicdep.org/wiki/Hicdep_1.100/TablePregObs for the current version BM suggests not to use this table at the moment.
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21 Nov 2015 12:00 AM
0 Replies and 43 Views tblPREG - Pregnancy Discussion with IeDEA (1)  43  0 Started by  SuperUser Account Dear All This is the first topic with discussions of tables related to pregnant women and pregnancy outcomes in view of potential inclusion of some of the tables/variables in the IeDEA data harmonization efforts. Please see http://www.hicdep.org/wiki/Hicdep_1.100/TablePreg for the current version BM suggests to consider the use of the two key fields MOTHER_ID Patient ID of mother of child PREG_SEQ Sequence number of the pregnancy for the specified mother pl...
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20 Nov 2015 12:00 AM
1 Replies and 58 Views Transition from Child to Adult  58  1 Started by  SuperUser Account The topic is currently discussed with the IAS initiative CIPHER. We propose to add the following additional fields to tblVIS: CLINIC_TYPE: Type of clinic / service 1 paediatric 2 adolescent within paediatric care 3 adolescent within adult care 4 adolescent stand alone 5 adult 9 missing SPEC_TYPE: Type of specialist providing care 1 paediatric 4 adolescent 5 adult physician 9 missing TRANS_STAGE: Stage of tr...
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by  SuperUser AccountJump to last post
20 Nov 2015 12:00 AM
0 Replies and 37 Views HICDEP Release 1.90  37  0 Started by  SuperUser Account Dear all We have just released HICDEP version 1.90. As always, you can find a PDF version attached. Best regards, Raphael Fuchs
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19 Nov 2015 12:00 AM
3 Replies and 108 Views Request for new ART_RS codes  108  3 Started by  SuperUser Account Dear all, I got a request for additional codes to be included in ART_RS. Those are: 4.1, Hypersensitivity reaction - Allergic reaction 4.2, Hypersensitivity reaction - Anaphylactic reaction Any comments or suggestions from anyone Casper
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by  SuperUser AccountJump to last post
12 Nov 2015 12:00 AM
0 Replies and 40 Views coding AIDS_defining conditions  40  0 Started by  SuperUser Account Dear all, I received the following question from the PISCIS cohort. ' I am reviewing the coding of AIDS-defining conditions and for one of our centres, I have to extract from a long list of their ICD10 diagnosis codes, CDC-C and B conditions. For some this is easy (Kaposi) but for others (e.g. recurrent salmonella), it is less so or at least there are more choices to be made. Mulling over the best way of doing this I wondered for the sake of consistency whether you had any ...
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13 Oct 2015 12:00 AM
0 Replies and 37 Views Stop-Reason: Regular treatment termination for non-ART drugs  37  0 Started by  SuperUser Account Hello While for ART (currently) a regular treatment termination seems not possible, for other mediations (tblMED) this situation occurs quite frequently (e.g. HCV, antibiotic treatmens etc.). I therefore suggest to add a separate code for regular treatment termination. Numbers which could be assigned are 92.5, 95.1, other suggestions Best, Bruno
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28 Sep 2015 12:00 AM
1 Replies and 65 Views New table: tblCENTER  65  1 Started by  SuperUser Account We have adopted tblCENTER from IeDEA - Thanks to IeDEA for sharing! This table contains information about the Center in general, such a geographical location, situation, level of care, population served and administrative dates. Please review and contribute to the discussion. Is the variable ADULTPED precise enough Do we need additional administrative dates (e.g. related to censoring of data) Best Bruno
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by  SuperUser AccountJump to last post
10 Sep 2015 12:00 AM
0 Replies and 42 Views Reasons for stopping medication - new codes  42  0 Started by  SuperUser Account As we are also using the stop reasons for non-ART drugs we have to expand the current codes. Two situations just were raised from the SHCS: Risk for bone toxicity (osteoporosis) Finished regular treatment (e.g. for other antibiotics) Are there other situations you have encountered Are you aware of an internationally accepted broader coding scheme Thanks for your input Bruno
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11 Jun 2015 12:00 AM
0 Replies and 37 Views Country Code for Republic of Kosovo  37  0 Started by  SuperUser Account Dear all, we have received a request concerning the country code for the Republic of Kosovo. So far we didn't define such a code, this is due to the fact that there doens't yet exist an official (ISO 3166-1) encoding for Kosovo. We have decided to wait until Kosovo is added to the ISO 3166-1 list, instead of define a code on our own. Best wishes, Patrick
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04 May 2015 12:00 AM
2 Replies and 80 Views Clinical events coding  80  2 Started by  SuperUser Account Hi We have been looking at the case definitions for the clinical events coding (tblCEP). Our UK Register of HIV Seroconverters cohort does not systematically capture such detailed information as listed in the HICDEP case definitions. We ask physicians to report on whether the patient had, for example, 'liver disease' or 'diabetes', leaving it up to the clinician's interpretation, with a space for the clinician to write their own details alongside this in free text (usually qui...
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by  SuperUser AccountJump to last post
04 Mar 2015 12:00 AM
1 Replies and 66 Views GP120 sequence data  66  1 Started by  SuperUser Account I received the following email, which sparked this post: I have a question about LAB_RES_LVL2 table. When I compile the GP120 sequence data, I have the co-receptor result (CCR5 or CXCR4) and the full positive rate (percentage number). In which of the cells of LAB_RES_LVL2 table should I insert these data Now my question is as follows: AS far as I can see this situation is not covered in the existing RES tables in HICDEP. I am not a bio-informatics person and have no...
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by  SuperUser AccountJump to last post
03 Mar 2015 12:00 AM
1 Replies and 53 Views tblART and tblMED  53  1 Started by  SuperUser Account Dear, PLease find below a message from the FHDH cohort about misclassified treatment in tblMED and ART. Could we discuss this Dear Monique, The misclassified treatments in COHERE 2015's Merger MED and ART tables, are : J05AF08 J05AF10 J05AF11 J05AF12 These are HBV antiviral treatments and not antiretroviral treatments. Therefore, they should be classified in MED table and not in ARV table Best regards Hana
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by  SuperUser AccountJump to last post
03 Mar 2015 12:00 AM
2 Replies and 56 Views tblART (see also message 147)  56  2 Started by  SuperUser Account Dear all, Please find below a question from the PISCIS cohort: 'Some of our hospitals have started to dispense Cabotegravir (GSK-744) and I cannot find either an ATC or a HICDEP code for this. Is there one in the pipeline' How do we code new (ART)medication not yet an ATC code assigned Monique
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by  SuperUser AccountJump to last post
02 Mar 2015 12:00 AM
1 Replies and 53 Views ART_RS: Reason for stopping treatment  53  1 Started by  SuperUser Account In HICDEP 1.8 one of the reasons for stopping treatment is 'defaulter' (code 94.2). Can somebody explain to me what is meant with this Thanks a lot, Monique
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by  SuperUser AccountJump to last post
12 Jan 2015 12:00 AM
4 Replies and 60 Views Causes of death codes specific for the TB-HIV study  60  4 Started by  SuperUser Account At CHIP we would like to have added the following 'Causes of death' codes specific for the TB-HIV study. To add under: 01.1 (AIDS infection) 01.1.1 Tuberculosis 01.1.1.1 Pulmonary tuberculosis 01.1.1.2 Extrapulmonary TB 01.1.1.2.01 Pleura (isolated, without lungs involvement) 01.1.1.2.02 Lymphatic intrathoracic (isolated, without lungs involvement) 01.1.1.2.03 Lymphatic extrathoracic 01.1.1.2.04 Pericardia 01.1.1.2.05 Spine 01.1.1.2.06 Bone/joints...
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by  SuperUser AccountJump to last post
19 Dec 2014 12:00 AM
3 Replies and 42 Views Modification coding table ART  42  3 Started by  SuperUser Account Could the following treatment be added to the coding table for ART J05AX12= Dolutegravir V03AX03= Cobistat And the following coded be deleted from the table ART J05AE06 Lopinavir/Ritonavir (Kaletra) has been replaced by J05AR10 Kaletra/Aluvia (Lopinavir/Ritonavir) Thanks, Monique
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by  SuperUser AccountJump to last post
18 Dec 2014 12:00 AM
2 Replies and 70 Views Can we please add the following value to lab_u: 19=ng/mL  70  2 Started by  SuperUser Account Hello :) For a hepatitis project in COHERE, we are using the lab-type 'AFP' (Alpha1 fetoprotein). The unit most commonly used to measure this is ng/mL (nanograms per milliliter) Can we please add the following value to lab_u: 19=ng/mL Best Regards, Rikke
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by  SuperUser AccountJump to last post
11 Dec 2014 12:00 AM
1 Replies and 50 Views DIS - opportunisticinfections and malignancies  50  1 Started by  SuperUser Account Hello I had a request posed to me if we perhaps could put the text ' and malignancies' at the end of DIS description to make it clear that the opportunistic malignancies are here and not in the CEP table. Best, Rikke
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by  SuperUser AccountJump to last post
10 Dec 2014 12:00 AM
0 Replies and 43 Views tblLAB_VIRO  43  0 Started by  SuperUser Account Hi, In COHERE we have added to the LAB_VIRO the following two tests: IGRA= interferon-Gamma Release Assay TST= Tuberculosis Skin Test or Mantoux test and an additional unit 4=mm ( for the TST test) Best, Monique
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23 Sep 2014 12:00 AM
0 Replies and 35 Views tblBAS  35  0 Started by  SuperUser Account Hi, In COHERE we added to the tblBAS to variable COUNTRY to record the country of care. On the other hand we deleted the variable ORI_OTH, as with the introduction of the UN codes for region and country to code origin, the variable ORI_OTH became obsolete. Best, Monique
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23 Sep 2014 12:00 AM
2 Replies and 54 Views tblART and tblMED  54  2 Started by  SuperUser Account Hi everyone, new drugs for HIV and HCV are to be expected within the next months or are already in use. Please consider them for HICDEP 1.8. Best wishes Robert tblART J05AR12 Lamivudine and tenofovir disoproxil J05AR13 Lamivudine, abacavir and dolutegravir J05AR14 Darunavir and cobicistat tblMED HCV drugs already in use J05AE14 Simeprevir J05AX14 Daclatasvir J05AX15 ...
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by  SuperUser AccountJump to last post
17 Sep 2014 12:00 AM
0 Replies and 39 Views HICDEP Release 1.80  39  0 Started by  SuperUser Account Dear all A first version of the changelog to the upcoming HICDEP release 1.80 is now available. If you have any remarks or would like to add any changes to this upcoming release, please use this thread or let me know via email. The HICDEP version 1.80 is scheduled to be finalised in the beginning of october. Best regards, Jens
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16 Sep 2014 12:00 AM
2 Replies and 43 Views Suggested changes to Hepatitis-related codes in tblCEP  43  2 Started by  SuperUser Account Dear All I had the chance to discuss the hepatitis codes from tblCEP with Massimo Puoti and Robert Zangerle. To improve the tool for an adequate clinical classification of hepatic liver diseases we suggest the following changes: New type of event: Fibroscan IQR In addition to the Fibroscan stiffness (CEP_ID='FIBS') with the elasticity value in CEP_V (CEP_ID='FIBS', CEP_SPEC=elasticity in KPa) we need to also collect the interquartile range (IQR) of the measurements. An ...
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by  SuperUser AccountJump to last post
04 Sep 2014 12:00 AM
0 Replies and 43 Views Public example data now available  43  0 Started by  SuperUser Account The public example data set is now available for download on the hicdep.org web page.
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02 Sep 2014 12:00 AM
0 Replies and 37 Views Public example data now available  37  0 Started by  SuperUser Account The public example data set is now available for download on the hicdep.org web page.
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02 Sep 2014 12:00 AM
8 Replies and 60 Views CoDe added some sub-codes  60  8 Started by  SuperUser Account Hello everyone. CoDe has added some more specific sub-codes under point 22 and 23 22 Psychiatric disease (other causes) 22.1 Mental and behavioural disorders due to use of psychoactive substances (other than alcohol and intravenous opioids) 22.2 Schizophrenia, schizotypal and delusional Disorders 22.3 Mood /Affective disorders (Major depressive disorder, Bipolar disorder and other mood disorders) 22.4 Neurotic, stress-related and somatoform disorders (including a...
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by  SuperUser AccountJump to last post
25 Jun 2014 12:00 AM
2 Replies and 49 Views tblLAB -new LAB_ID  49  2 Started by  SuperUser Account Hello. I would like to suggest PTH - Parathyroid Hormone Best Regards, Rikke
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by  SuperUser AccountJump to last post
29 Apr 2014 12:00 AM
4 Replies and 51 Views Change in coding table for TableBas/FieldEthnic  51  4 Started by  SuperUser Account ​http://hicdep.org/wiki/Hicdep_1.80/TableBas/FieldEthnic Revised and added codes for different ethnicities. Also changed limitations and instructions. Please review and comment. Sebastian
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by  SuperUser AccountJump to last post
10 Apr 2014 12:00 AM
3 Replies and 47 Views tblCANC  47  3 Started by  SuperUser Account Dear all, tblCANC ​http://hicdep.org/wiki/Hicdep_1.80/TableCANC has been added. Feel free to look at the draft and comment your recommendations here. Sebastian
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by  SuperUser AccountJump to last post
31 Mar 2014 12:00 AM
1 Replies and 38 Views Questions re: migrant status  38  1 Started by  SuperUser Account Dear colleagues Following Julias presentation today here in Sitges, we need to discuss the addition of following variables to tblBAS: Country of birth/Geographic origin (i.e. splitting the currently combined variable ORIGIN 'Nationality or region of origin of patient') Year of arrival to host country if born abroad Best, Bruno
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by  SuperUser AccountJump to last post
26 Mar 2014 12:00 AM
1 Replies and 36 Views Proteinuria in HICDEP  36  1 Started by  SuperUser Account I noticed that not all proteinuria lab measurement made it into HICDEP 1.7. Could the following lab measurements be added to the HICDEP version 1.8 ACRA: Albumin Creatinin Ratio PCRA: Protein Creatinin Ratio PROT: Protein Thanks, Monique
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by  SuperUser AccountJump to last post
12 Mar 2014 12:00 AM
3 Replies and 44 Views tblLAB.lab_u 16=femtoliters  44  3 Started by  SuperUser Account Hi. In COHERE 2014 merger we are collecting LAB_ID=MCV (Mean Corpuscular Volume). The standard unit of measurement of this is 'femtoliters'. I would like to suggest to add this as LAB_U=16 (And the reason we want to add it as '16' is that in the latest COHERE SOP we have 13=µg/L, 14=mg/24h and 15=mg/mmol) Best Regards, Rikke Brandt (chip)
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by  SuperUser AccountJump to last post
12 Mar 2014 12:00 AM
2 Replies and 45 Views HEIGH in tblBAS moved to additional field  45  2 Started by  SuperUser Account I'd like to move the variable HEIGH in tblBAS from a core field to an additional field. Many cohorts do not collect this information, so I think its best place is in the Additional fields section.
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by  SuperUser AccountJump to last post
27 Jan 2014 12:00 AM
0 Replies and 34 Views tblART - known to be off ART variable  34  0 Started by  SuperUser Account Hi All, It is known that cART is the single most effective intervention to reducing morbidity and mortality in HIV infected individuals. It is therefore extremely important we accurately capture cART usage in our studies. For various reasons, individuals stop taking ART which can have serious consequences on their clinical outcomes. ART breaks are not well captured in HICDEP and can only be derived through ART stop and start dates. It is impossible to determine if the time between...
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09 Dec 2013 12:00 AM
3 Replies and 37 Views Mapping: one to many in tblDIS  37  3 Started by  SuperUser Account Here is a real life problem to consider: The HICDEP 'DIS_ID' field (used to store CDC class C OIs) has the code for TB but the problem is, if we export from our database we are going from something general in our database to something more specific in HICDEP. In our database, we store an AIDS defining illness under Events called 'Mycobacterium tuberculosis, any site (pulmonary or extrapulmonary)' and in HICDEP they have 'Mycobact. tuberculosis pulm.' and 'Mycobact. tuberculosis ...
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by  SuperUser AccountJump to last post
28 Oct 2013 12:00 AM
5 Replies and 43 Views Coding of causes of death  43  5 Started by  SuperUser Account In COHERE we have asked the cohorts to indicate what has been the source of information for coding the causes of death. We identified 5 possible options: 1) Did not apply any method, just had the codes mapped into HICDEP/CoDe 2) Applied full Cause of Death (CoDe) protocol within own cohort 3) Used data received back from the ART-CC 4) Used data received back from DAD 5) A mixture of the above. If the answer was “5) A mixture of the above”, we asked the cohorts to verify for ...
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by  SuperUser AccountJump to last post
18 Oct 2013 12:00 AM
4 Replies and 45 Views HICDEP 1.70 - Release Candidate  45  4 Started by  SuperUser Account Hi all You can find the RC of the version 1.70 here. The change log is included in the PDF. The new release consists of mainly small changes: Optional fields are added (regarding employment, education, smoking...), redundancies in the tblDIS coding were removed and tblAE was renamed to tblCEP. In order to comply with the four week procedure prior to the next TC we propose to consider the enclosed 1.70 version as official release candidate and forward to the cohort data m...
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by  SuperUser AccountJump to last post
12 Oct 2013 12:00 AM
1 Replies and 31 Views tblLTFU - Additional fields  31  1 Started by  SuperUser Account The table LTFU contains additional variables to collect the ICD-10 coding for coding of causes of death, however I have learned that some cohorts do use the ICD-9 coding instead of ICD-10 coding, however there are no HICDEP variables to provide these ICD-9 codings. Could we add these variables to HICDEP Thanks, Monique
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by  SuperUser AccountJump to last post
16 Sep 2013 12:00 AM
1 Replies and 33 Views tblART - Additional fields -ART_DO  33  1 Started by  SuperUser Account Could we introduce two variables for dosage in the table ART: ART_DO: Dose per intake new variable : Total Daily dose Monique
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by  SuperUser AccountJump to last post
16 Sep 2013 12:00 AM
1 Replies and 26 Views Additions to the Causes of Deaths in the CODE system  26  1 Started by  SuperUser Account I would like to add the following codes below code 4: 4 = Malignancy (other than 1.2 and 3, 3.1, 3.2) 4.101 = ALL - Leukaemia: Acute lymphoid 4.102 = AML - Leukaemia: Acute myeloid 4.103 = CLL - Leukaemia: Chronic lymphoid 4.104 = CML - Leukaemia: Chronic myeloid 4.109 = LEUK - Leukaemia: unspecified 4.03 = ANUS - Anus cancer 4.04 = BLAD - Bladder cancer 4.05 = BONE - Bone cancer 4.06 = BRAC - Brain cancer 4.07 = BRCA - Breast cance...
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by  SuperUser AccountJump to last post
16 Sep 2013 12:00 AM
4 Replies and 34 Views Name of tblAE  34  4 Started by  SuperUser Account Hi everybody In our last telephone conference, we noted that the name of tblAE may not be the best fit, as it contains not only adverse events, but also clinical procedures and non-adverse events. Hence we propose to rename tblAE to tblCEP (Clinical Events and Procedures). To keep the column names consistent, we would rename AE_D, AE_ID, AE_SPEC to CEP_D, CEP_ID, CEP_SPEC (and do the same to the optional fields). In the coding table of the field AE_ID (CEP_ID)(http://www...
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by  SuperUser AccountJump to last post
08 Sep 2013 12:00 AM
1 Replies and 26 Views CoDe: Two new subcategories  26  1 Started by  SuperUser Account I would like to suggest the addition of two subcategories for '08 - MI or other ischemic heart disease' new codes: 08.1 - AMI 08.2 - Other ischemic heart disease We need to distinguish between the two in DAD Best regards, Rikke
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by  SuperUser AccountJump to last post
05 Sep 2013 12:00 AM
5 Replies and 43 Views Additions to tblMED  43  5 Started by  SuperUser Account I would like to add a few Hep C drugs to tblMED please: Download this table as CSV file Download this table as XML file Codes (Extended ATC-Codes) Other HIV-related drugs J05AE12 Boceprevir (trade name Victrelis) J05AE11 Telaprevir (trade names Incivek and Incivo) Ashley
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by  SuperUser AccountJump to last post
19 Aug 2013 12:00 AM
6 Replies and 52 Views tblBAS SEROHOW codes  52  6 Started by  SuperUser Account In the DAD study we have a fourth option for the SEROHOW variable in tblBAS 4 = First pos HIV-1 test I would very much like the 'First pos HIV-1 test' option as part of the SEROHOW variable. If this could be added to HICDEP 1.70 I would appreciate it. I would suggest placing the 'Other' option just before 'Unknown' - In this case 8: 1 = Midpoint between last neg. and first pos. HIV-1 test 2 = Lab evidence of seroconversion ...
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by  SuperUser AccountJump to last post
31 Jul 2013 12:00 AM
1 Replies and 29 Views Cohere SOP versus HICDEP SOP  29  1 Started by  SuperUser Account Will the SOP of Cohere from last spring (2013) be intergrated into the HICDEP SOP My syntaxes are now based on Cohere (especially tblAE is very different now) but HICDEP hasn't been changed.
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by  SuperUser AccountJump to last post
19 Jul 2013 12:00 AM
2 Replies and 33 Views small addition LAB_RNA.RNA_T  33  2 Started by  SuperUser Account I would like to add the Assay type for RNA: 42 = Abbott Real Time HIV M200 currently used in one of our DAD cohort
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by  SuperUser AccountJump to last post
07 May 2013 12:00 AM
0 Replies and 33 Views ethnic (Americas?)  33  0 Started by  SuperUser Account I think perhaps the ethnicity variable in BAS has one 'wrong' code. Looking at it - there is a category 'Americas' which correspond to one of the original origin codes. But I don't see how this can be an ethnicity.
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23 Apr 2013 12:00 AM
2 Replies and 31 Views How do I actually download data?  31  2 Started by  SuperUser Account Folks, I have spent some time learning the structure of your database and I think I understand it. What I don't know how to do is to actually download data. Can you give me some info on how to download data Thanks so much for your time, KW
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by  SuperUser AccountJump to last post
21 Mar 2013 12:00 AM
2 Replies and 33 Views LTFU and Certainty of death's cause  33  2 Started by  SuperUser Account On the paper form for CoDe it is asked that the person give an indication of how certain the diagnosis is. This is writen as follows: Certainty of Diagnosis: Definite = 95-100 certainty, Likely = 80-95 certainty, Possible = 50-80 certainty I propose adding optional fields in the tblLTFU that can capture this information, for those cohorts that have it. suggested name: Death_RDC1, DEATH_RDC2 etc for as many DEATH_Rxx there ...
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by  SuperUser AccountJump to last post
19 Mar 2013 12:00 AM
4 Replies and 39 Views Small amendments thread  39  4 Started by  SuperUser Account Trying to use this thread for needed additional codes - thus only minor stuff that may not need a new thread each time. First one up (emerging from a EuroSIDA site): Cobas Ampliprep/Cobas TaqMan - HIV-1 test from ROCHE. - (Version 2.0) Suggested code: 67 Cobas 2.0 Ampliprep/TaqMan Honestly I'm getting confused about how these tests should be arranged/ordered/nested. Help would be most welcome...
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by  SuperUser AccountJump to last post
16 Mar 2013 12:00 AM
7 Replies and 48 Views LAB_ID duplicate tests  48  7 Started by  SuperUser Account The LAB_ID 'WBC' and 'LEUK' are referring to the same blood test to measure the number of white blood cells. Please delete 'LEUK'from the coding list.
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by  SuperUser AccountJump to last post
19 Feb 2013 12:00 AM
3 Replies and 39 Views QA check changes so far  39  3 Started by  SuperUser Account I've updated the QA checks with issues that have already been resolved (and a few cases of duplicate codes), here's a quick overview of the changes since 1.60: Deleted Tablename WithinTable or CrossTable Error Code Description of inconsistency Study Specific HICDEP tblLAB WithinTable LW006 Missing LAB_LLN YES tblLAB WithinTable LW007 Missing L...
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19 Feb 2013 12:00 AM
1 Replies and 28 Views LAB_ID  28  1 Started by  SuperUser Account Could anyone please explain me the difference between ALP Alk.P.tase APT Alk. Phosphatate (Is this a spelling error) Which one is phosphatase alkaline (ALP or APT)
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19 Feb 2013 12:00 AM
1 Replies and 27 Views tblBAS CSV file ORIGIN  27  1 Started by  SuperUser Account The download of the CVS file for ORIGIN is not correct.Please correct.
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13 Feb 2013 12:00 AM
0 Replies and 38 Views Non AIDS-defining malignancies (follow-up of discussion item 41)  38  0 Started by  SuperUser Account I have involved Julia Bohlius from Bern who did several cancer-related analysis in COHERE and is co-chair of the IeDEA cancer working group. She will lead and share the discussion between HICDEP and IeDEA. Bruno
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30 Jan 2013 12:00 AM
3 Replies and 41 Views --  41  3 Started by  SuperUser Account I would like some additions to the list of AE_SPEC in relation to non-AIDS Defining Malignancies (NADM) ​http://hicdep.org/wiki/Hicdep_1.60/TableAe/FieldAeSpec BONE=Bone cancer BRAC=Brain cancer ESOP=Esophagus cancer GALL=Gallbladder cancer GYCA=Gynaecologic cancer HENE=Head and neck (incl. face) cancers PANC=Pancreas cancer OTH=Non-Aids Defining Malignancy: Other They do not conflict with already existing AE_SPE...
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29 Jan 2013 12:00 AM
4 Replies and 38 Views Code for Unknown Origin  38  4 Started by  SuperUser Account Hi All, I'm starting the CASCADE data checks and realized that we do not have an unknown coding for Origin in tblBAS. There currently is not a 99 UN code, but I'm hesitant to use this for Unknown as the UN codes we're using span roughly 0-1,000. We could use 999 Does anyone have thoughts Ashley
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28 Jan 2013 12:00 AM
5 Replies and 40 Views Error Checks that I am not sure are right  40  5 Started by  SuperUser Account Hello all I am currently spending my time making sure that the Quality Assurance Checks in the HIV DDM tool reflect the HICDEP 1.60 error-codes. In this more detailed process of going through the tables I noticed some odd things. for tblLAB_VIRO Error Code LVW001 for tblLAB_VIRO is in fact NOT a 'Within-Table' check as it is defined as 'Patient has no record in BAS' - I would suggest renaming this check 'LVC001' and moving it to the 'Cross-Table' section of the qa checks. I am n...
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15 Jan 2013 12:00 AM
1 Replies and 35 Views LAB_CD4: QA error coded CW009  35  1 Started by  SuperUser Account LAB_CD4 Could anyone tell me how you would program the following QA check: CW009 -CD4 counts spike up or down suddenly (large change in less than a year)-. How would you qualify 'spike uu or down suddenly' Thanks, Monique
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14 Jan 2013 12:00 AM
10 Replies and 55 Views Ability to store QA check results  55  10 Started by  SuperUser Account Hello On behalf of the D:A:D datamanagers I would like to suggest a format for Error checks and the result on running them. And also a possibility of capturing feedback such as 'verified' for outliers. A QA check table should include: 'Error Code' - the QA-check Identifier (e.g. 'VW004' for the weight out of acceptable range) the 'unique identifier' from the table that triggered the error (e.g. PATIENTVIS_D for tblVIS) And the 'Verified' field to allow for ...
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14 Jan 2013 12:00 AM
1 Replies and 38 Views LAB_CD4: QA error codedLAB_CD4: QA error coded CW009 CW009  38  1 Started by  SuperUser Account LAB_CD4 Could anyone tell me how you would program the following QA check: CW009 -CD4 counts spike up or down suddenly (large change in less than a year)-. How would you qualify 'spike uu or down suddenly' Thanks, Monique
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14 Jan 2013 12:00 AM
1 Replies and 27 Views LAB_CD8  27  1 Started by  SuperUser Account Would it be possible to create a table LAB_CD8 in HICDEP 1.70 based on the table LAB_CD4 in HICDEP 1.60 (and previous versions)
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11 Jan 2013 12:00 AM
0 Replies and 38 Views small formatting error in a table in the wiki  38  0 Started by  SuperUser Account Coding Table: Early childhood-related adverse events DEVD Developmental delay is set as heading of the table - but should be a category.
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10 Jan 2013 12:00 AM
2 Replies and 32 Views tblMED and tblART: define category of medication/treatment  32  2 Started by  SuperUser Account At the HICDEP version 1.60 it is described that the tblMED holds type, date , value and unit for other HIV related medicines. I think we should change this into next version into tblMED holds type, date, value and unit for medication/treatment. Moreover I would like to introduce a variable (e.g MED_CAT) to define a category of medication/treatment e.g. HIV, HBV and HCV. I would also suggest to introduce a similar variable in the tblART to define a category of medication/treatme...
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08 Jan 2013 12:00 AM
1 Replies and 27 Views tblVIS new fields  27  1 Started by  SuperUser Account For HICDEP 1.70 I would like to suggest the inclusion of smoking status/smoking history and family history of AMI. FAM_Y = 'First degree relative with AMI before age 50' (coded yes/no/unknown) SMK_Y = 'Is the patient currently a smoker' (coded yes/no/unknown) And optionally the smoking history: SMD_Y = 'Was the patient ever a smoker' (coded yes/no/unknown) This provides valuable insight into some of the cardiovascular risks of the individu...
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03 Jan 2013 12:00 AM
0 Replies and 33 Views Fixed dose, generics and trade names  33  0 Started by  SuperUser Account Dear all, As discussed in the recent meetings, there is interest in capturing data on fixed dose drugs and generics by recording trade names. Please share any comments you have on this topic, e.g. regarding how this should relate to the current tables tblMED and tblART, how trade names should be coded, any issues with capturing this data, etc. Kind regards, Mark
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27 Nov 2012 12:00 AM
0 Replies and 32 Views Fixed dose, generics and trade names  32  0 Started by  SuperUser Account Dear all, As discussed in the recent meetings, there is interest in capturing data on fixed dose drugs and generics by recording trade names. Please share any comments you have on this topic, e.g. regarding how this should relate to the current tables tblMED and tblART, how trade names should be coded, any issues with capturing this data, etc. Kind regards, Mark
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27 Nov 2012 12:00 AM
0 Replies and 30 Views changes to hicdep  30  0 Started by  SuperUser Account Discussions between CASCADE and COHERE lead to the inclusion of a few new variables in tblBAS in hicdep: tblBAS - Basic clinical, background and demographic information Field name Format Description RECART_D yyyy-mm-dd Date ART started LTART_D yyyy-mm-dd Date last assessed for ART. If started ART, last date known to be on ART, or if not on ART, last date ART free.
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16 Nov 2012 12:00 AM
0 Replies and 34 Views HICDEP 1.60 released  34  0 Started by  SuperUser Account HICDEP 1.60 released ¶ HICDEP 1.60 has been released as of 23 October 2012. See the ChangeLog for a list of changes since version 1.50. The online version is accessible via http://www.hicdep.org/wiki/Hicdep_1.60 while a PDF printout can be downloaded from http://www.hicdep.org/raw-attachment/wiki/WikiStart/HICDEP_1.60.pdf. If you have questions or comments, do not hesitate to contact adminhicdep.org.
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23 Oct 2012 12:00 AM
5 Replies and 44 Views HICDEP 1.60 release candidate  44  5 Started by  SuperUser Account After a few more changes in the last week, the HICDEP 1.60 specification is now in release candidate state. The PDF has been updated. To reiterate, the release process is as follows: WP4 members should forward the release candidate to any data managers or researchers they know who might have valuable feedback. As there is no TC scheduled, WP4 members should reply to this discussion with an acknowledgement of the changes, whether any issues are found or not. In 3 ...
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21 Oct 2012 12:00 AM
0 Replies and 29 Views HICDEP 1.60 changes  29  0 Started by  SuperUser Account As discussed in the last TC, I have updated the ChangeLog to describe the HICDEP 1.60 changes. Pending a few minor issues, I will issue a release candidate next week, including a downloadable PDF. Once the release candidate is out, the release process will roughly follow the ReleaseProcess outlined by Simon: WP4 members should forward the release candidate to any data managers or researchers they know who might have valuable feedback. As there is no TC scheduled, WP4 me...
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19 Sep 2012 12:00 AM
0 Replies and 31 Views Coding Table for HCV geno-/subtypes  31  0 Started by  SuperUser Account Dear All Thank you for commenting on the HCV geno-/subtype draft table for HICDEP 1.60 Coding Table for HCV geno- and subtypes: From ​http://www.hepatitis-central.com/hcv/genotype/explained.html Classifications The most commonly used classification of Hepatitis C virus has HCV divide...
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28 Aug 2012 12:00 AM
1 Replies and 29 Views coding of HIV subtypes and CRFs  29  1 Started by  SuperUser Account Dear all, Margaret May proposed a unified encoding for HIV subtypes and CRFs. This concerns the field SUBTYPE of table tblLAB_RES. I forward the document on her behalf: ART-CC has an approved concept sheet to look at prognosis by subtypes. We have looked at the subtype data in the current COHERE database and have found that there is no standardisation of terminology for subtypes and CRFs. We would like to pro...
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24 Aug 2012 12:00 AM
3 Replies and 34 Views New variables to add to tblBAS in Hicdep 1.6New variables to add to tblBAS in Hicdep 1.6  34  3 Started by  SuperUser Account tblBAS - Basic clinical, background and demographic information The current Ethnicity variable is catered to an American audience. COHERE and CASCADE both agree this variable should be re-evaluated and re-formatted so it can be universal. Additionally, CASCADE does not collect Ethnicity in this way, as it is not relevant to our cohorts. We suggest there to be a further discussion on Ethnicity and to invite relevant individuals to this discussion. Please sug...
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23 Aug 2012 12:00 AM
1 Replies and 30 Views coding of adherence data  30  1 Started by  SuperUser Account Dear all, Margaret May proposed a coding for adherence data (self-reported as well as based on prescription refill). I forward the document on her behalf: Please see attached discussion document which details the current data ART-CC have received on adherence. We think including prescription refill data in HICDEP would not be problematical. However, self - report adherence questionnaires are not stand...
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14 Aug 2012 12:00 AM
4 Replies and 35 Views SES - Educational level  35  4 Started by  SuperUser Account Dear all, With regard to the socio-economic status (SES) variables, I'd like to propose the following encoding for the educational level: Field name Format Description EDU_LVL character: 0 = Pre-primary...
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by  SuperUser AccountJump to last post
14 Aug 2012 12:00 AM
5 Replies and 42 Views HCV Update  42  5 Started by  SuperUser Account Part of work package 3 (task 3.9) indicates commitment to exploring Hepatitis C. To carry out this work, more HCV data needs to be collected, in particular HCV tretment, HCV genotype and subtype. I'm suggesting we add a HCV table to HICDEP with similar specification as tblART. Please see below for my version of the proposed table. I also would like to suggest adding two fields to tblLAB_VIRO, namely HCV geotype and HCV subtype. tblHCV - Hepatitis C treatm...
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25 Jun 2012 12:00 AM
2 Replies and 31 Views Rationale for inclusion of occupational status within datasets for WP4  31  2 Started by  SuperUser Account As discussed at the TC of May, 29th, we would like to invite the cohorts to comment on the following rational: Employment is a major factor in maintaining income levels and living conditions, especially among persons with long-lasting chronic diseases. In addition, unemployment has been shown to be an independent predictor of morbidity and mortality both in the general population and among HIV-infected people. ...
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25 Jun 2012 12:00 AM
0 Replies and 36 Views HCV in tblLAB_RES  36  0 Started by  SuperUser Account Following the discussion of the February TC, I went ahead and made the changes such that tblLAB_RES and its level-specific subtables may also encode HCV resistance test results. It turned out to require a few changes we didn't anticipate in the first place, so I'd like to encourage you review the current draft. As discussed, I added a variable VIRUSTYPE to tblLAB_RES which allows to distinguish HCV and HIV entries. However, this change also impli...
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11 Apr 2012 12:00 AM
1 Replies and 27 Views Changes to HICDEP: QA check tblLAB_RNA  27  1 Started by  SuperUser Account Please note that there is a typo error in the QA checks RW003 and RW008 for the tblLAB_RNA. RNA_U should be RNA_UL Monique
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12 Mar 2012 12:00 AM
0 Replies and 37 Views ISCED 2011  37  0 Started by  SuperUser Account Dear all, I would just like to note that there has been a revision of the International Standard Classification of Education, the ISCED 2011. Because there seem to be some significant changes in the codings, I have explicitly referenced the 1997 standard in the EDU_LVL variable that was used in the proposal. The correspondence between codings of the top-level codes between the 1997 and 2011 standards is shown in table 19 on page 66 of http://www.uis.unesco.org/Education/Documents/UNESCO_GC_36...
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13 Sep 2011 10:56 AM
0 Replies and 32 Views HICDEP 1.50 released  32  0 Started by  SuperUser Account Announcement: HICDEP 1.50 released HICDEP 1.50 has been released on Sep 13 2011. This version features: the new pediatric tables: tblPREG, tblPREG_OBS, tblPREG_OUT, tblDELIVERY_MUM, tblDELIVERY_CHILD, tblNEWBORN and tblNEWBORN_ABNORM. a new table tblSAMPLES which holds information regarding sample storage. an updated list of drugs tblART The document is accessible via http://www....
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13 Sep 2011 12:00 AM
0 Replies and 27 Views WP4 online survey tool - new version (30-jul-2011)  27  0 Started by  SuperUser Account Please check the latest version of the online survey tool for task 4 of EuroCoord Work Package 4 (Data Inventory). I think that all changes suggested during the last TC have been implemented except for the 'Finalize' button which will be inactive until we feed the database with a list of IDs and Passwords for the data managers. The list with the lab tests has remained almost unchanged since it's an exact copy of what's in HICDEP right now. I discussed the c...
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30 Jul 2011 12:00 AM
0 Replies and 33 Views WP4.4: New version of survey tool  33  0 Started by  SuperUser Account Dear all, Please check the current version of the online survey tool for task 4 of EuroCoord Work Package 4 (Data Inventory). Changes compared to the previous version: Less summary statistics Added question for possible selection bias issues Added set of questions for items not currently included in HICDEP Modified (less strict) way of asking about overlaps Drop-down lists replaced by radi...
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17 Jun 2011 12:00 AM
3 Replies and 32 Views HICDEP release process  32  3 Started by  SuperUser Account Hello everyone, As Charlotte and Jesper pointed out at the last TC, the release process for new HICDEP versions is currently undocumented. I'm about to change that, here's what I came up so far: roughly every year, the following happens: 4 weeks before a WP4 TC, I post a message to the discussion board stating that the version currently visible in the wiki is now considered a candidate for release as-is WP4 members forward the message...
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14 Jun 2011 12:00 AM
2 Replies and 37 Views Paediatric tables / more design issues  37  2 Started by  SuperUser Account Hello everybody, I have discovered another issue with the pediatric tables and need your input to fix it the right way. Problem: tblPREG had only MOTHER_ID as primary key. This implies that a woman can only get pregnant once. Proposed fix: Add MENS_D (the date of the last known menstrual period) to tblPREG's primary key. This allows women to get pregnant multiple times. However, it requires also adding the MENS_D field to all tables which reference records in tblPREG, i.e. tblPREG...
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09 Jun 2011 12:00 AM
3 Replies and 35 Views new variables for tblBAS, tblLTFU, tblLAB_VIRO  35  3 Started by  SuperUser Account Hello everyone, Sara Lodi has sent me a list of variables which CASCADE currently collects but which are not contained in the HICDEP standard. Some of them could be interesting to add, especially if other collaborations also collect them. Questions to discuss are: Which variables are commonly collected and therfore should be added to HICDEP Should the variable be marked as additional or mandatory Should more/other coding options be added for ca...
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02 Jun 2011 12:00 AM
0 Replies and 31 Views Spam Bot Attacks  31  0 Started by  SuperUser Account Hello everyone, As you may have noticed, the discussion board has become more popular lately, at least concerning robots posting spam messages. In order to combat this abuse, only users logged in can post messages to the forum for the time being. I will investigate whether we can use a captcha or another suitable mechanism in the future. I apologise for the troubles caused. Kind regards, Simon
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01 Jun 2011 12:00 AM
0 Replies and 28 Views tblSAMPLES - sample types  28  0 Started by  SuperUser Account Hi everyone, At the last TC, Yacine raised the issue that the sample types currently provided in tblSAMPLES is rather marginal. I agree with this, but it's hard to come up with a sensible list by myself, without knowing what other cohorts collect, so here is my question: Do you know any types of samples (be it blood or other materials) that the cohorts collect but are not listed in tblSAMPLES If yes, please let us know :) Kind regards, Simon
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09 May 2011 12:00 AM
1 Replies and 26 Views Website moved to new infrastructure  26  1 Started by  SuperUser Account The Quality Assurance check named ATC006 (AllTables/CrossTable/'Any fields not coded as coding lists on the table definition') I think needs to be more specific for the field being tested. I was sitting with the DAD checks for the ART table– and we test both ART_RS and ART_ID for valid codes according to the table definitions. If a given record fails at least one of these checks then the error code ‘ATC006’ would not indicate which field failed. Perhaps it could b...
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20 Apr 2011 12:00 AM
2 Replies and 30 Views Task 4.4: Data Inventory Survey  30  2 Started by  SuperUser Account Here is a temporary link ( http://195.134.113.76:8000/test3/survey.php ) for the Data Inventory Survey system I and Sara were working on. The survey system is not complete; you will see there is a Tab labeled 'Data Collection (Non-HICDEP) which, at the moment, is empty but I'm about to start filling it with actual questions regarding items that are not yet included in the HICDEP tables. The page is hosted at my personal computer so forgive the strange looking link. Things will be prettier at...
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06 Apr 2011 12:00 AM
2 Replies and 29 Views Suggestions/Questions for HICDEP Quality Assurance Checks  29  2 Started by  SuperUser Account The Quality Assurance check named ATC006 (AllTables/CrossTable/'Any fields not coded as coding lists on the table definition') I think needs to be more specific for the field being tested. I was sitting with the DAD checks for the ART table– and we test both ART_RS and ART_ID for valid codes according to the table definitions. If a given record fails at least one of these checks then the error code ‘ATC006’ would not indicate which field failed. Perhaps it could b...
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05 Apr 2011 12:00 AM
13 Replies and 77 Views Paediatric tables / design issues  77  13 Started by  SuperUser Account Hi everybody, I am currently including the paediatric tables (tblDELIVERY, tblNEWBORN, tblPREG, tblPREG_OBS and tblPregOut) into the HICDEP 1.50 draft. You can see the status quo in the above wiki articles. One thing standing out to me is that they are not designed in a relational way. E.g. tblNEWBORN basically consists of 28 fields, a boolean and a free-text character field for every problem that can occur. This is ok if the data is recorded and fed into the database only once al...
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12 Feb 2011 12:00 AM
0 Replies and 39 Views README  39  0 Started by  SuperUser Account Welcome to HICDEP's discussion board This board is a place to discuss changes in the HICDEP draft for a specific table/field or just the general format. Note that anyone is allowed to participate in the discussion. Inappropriate content will be deleted by the moderators without further notice. You can subscribe to individual topics that you are interested in or the whole forum. Once subscribed, the discussion board will notify you via email about new topics or answers. Any act...
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31 Jan 2011 10:27 AM
0 Replies and 9 Views Workshop in Paris - 6-7/12 Save the dates  9  0 Started by  SuperUser Account The next workshop of the Eurocoord WP3 Methodology group will be organized in Paris Thursday/Friday 6-7th December 2012. 6th of December: Course by Cecile Proust-Lima on Latent Class Model 7th December: Workshop. R Thiébaut
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01 Jan 2000 12:00 AM
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