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5 Replies and 485 Views
Branded or generic drugs 485 5
Started by SuperUser Account
Hi everyone,
In the ART-CC we would like to identify whether ARV drugs being taken by patients were branded or generic. We are aware of a handful of cohorts who collect this information, but cannot see a way in HICDEP to capture this information in data transfers.
If any cohorts collect these data could you let us know what format it is in Or if anyone has any suggestions for collecting these data in a harmonised fashion then that would be useful as well. On a phone call with Monique and ...
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5 |
485 |
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3 Replies and 244 Views
tblART new codes to ART_ID 244 3
Started by Pernille Iversen
Dear all tblART - we have requests for adding new ATC codes to ART_ID field. The codes and description can be found in the attached document. Any comments or suggestions Kind regards Pernille
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3 |
244 |
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2 Replies and 245 Views
New tables: tblART_ADH and tblMED_ADH 245 2
Started by Pernille Iversen
Dear all We propose to add new tables containing information on patients adherece to therapy. This applies to both ART and MED so all in all we propose the two new tables shown in the attached document: tblART_ADH and tblMED_ADH Any comments or suggestions Kind regards Pernille
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2 |
245 |
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2 Replies and 193 Views
tblBAS redesign of ETHNIC field 193 2
Started by Pernille Iversen
Dear all We propose to redesign tblBAS field ETHNIC, as it is viewed as no longer reflecting how etnicity is viewed upon and worked with. We would like to change the coding to three characters, shown in the attached table to the left (the existing code is shown to the right under Old Code). In order to ensure backwards compabatability we have included all previous options and as far as possible we have tried to link the new and old codes. We also had a request for adding aborigines. Any su...
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2 |
193 |
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2 Replies and 196 Views
tblVIS request for new GENDER_ID code 196 2
Started by Pernille Iversen
Dear all, We got a request for addition of a code to be included in GENDER_ID. The suggestion is to include 6=Non-binary Any comments or suggestions Kind regards Pernille
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2 |
196 |
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2 Replies and 199 Views
tblBAS update GENDER 199 2
Started by Pernille Iversen
Dear all, Gender is collected in both tblBAS (field GENDER) and tblVIS (field GENDER_ID) We suggest updating tblBAS: 1. Rename GENDER to GENDER_ID 2. Add codes, so that it matches field GENDER_ID in tblVIS 1 = Male 2 = Female 3 = Transgender male 4 = Transgender female 5 = Other (6 = non-binary) 9 = Unknown Any comments or suggestions Kind regards Pernille
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2 |
199 |
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4 Replies and 258 Views
tblCEP: include fractures in CEP_ID and corresponding codes to CEP_SPEC and CEP_V 258 4
Started by Pernille Iversen
Dear all We have a request for the possibility to specify where a fracture is located. Fractures are reported in tblCEP, so we propose adding codes to CEP_SPEC, for CEP_ID = FRA. Alongside fracture location we also propose adding the corresponding options to field CEP_V. Please see attached document. Any comments or suggestions Kind regards Pernille
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4 |
258 |
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1 Replies and 154 Views
New table: tblLAB_HCV 154 1
Started by Pernille Iversen
Dear all We propose to add a new table, containing information on HCV genotype and subtype. Please find the proposed table in the attached document. Any comments or suggestions Kind regards Pernille
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1 |
154 |
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1 Replies and 166 Views
New table: tblVIS_SUBS 166 1
Started by Pernille Iversen
Dear all We suggest adding a table to contain information on patients use of substances like alcohol og cigarettes. Please find the proposed table in the attached document. Any comments or suggestions Kind regards Pernille
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1 |
166 |
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1 Replies and 177 Views
tblCEP new ID to CEP_ID 177 1
Started by Pernille Iversen
Dear all tblCEP – request for adding new IDs to CEP_ID field: Code: CTAB Description: CT abdomen Any comments or suggestions Kind regards Pernille
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1 |
177 |
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1 |
164 |
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1 Replies and 159 Views
tblLAB_VIRO request for new codes to VS_T 159 1
Started by Pernille Iversen
Dear all, We have got a request for addition of codes to be included in VS_T. Those are: 10 = Rapid diagnostic test -3rd generation &91;HIV&93; 11 = Rapid diagnostic test -4th generation &91;HIV&93; 12 = Self-test-oral &91;HIV&93; 13 = Self-test-blood-based &91;HIV&93; 14 = Immunoassay (EIA, CLIA, ECL) - 3rd generation &91;HIV&93; 15 = Immunoassay (EIA,CLIA, ECL) plus p24 - 4th generation &91;HIV&93; 16 = WB: Western blot/immunoblot &91;HIV&93; 17 = NAT (Nucleic Acid Test...
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159 |
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0 Replies and 342 Views
Release of HICDEP 1.100 and transfer of management to CHIP 342 0
Started by SuperUser Account
Dear all,
Version 1.100 was released on August 7 and it includes changes that has been discussed with our collegues in IeDEA over the last two years.
Furthermore, the management of HICDEP has now been transfered from the Swiss HIV Cohort to CHIP in Copenhagen. I would like to thank Bruno Ledergerber for his many years of excellent leadership and engagement, as I humbly aspire to follow his example.
From CHIP, Casper Frederiksen (previous datamanager in COHERE) and the...
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0 |
342 |
21 Aug 2017 12:00 AM |
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1 Replies and 228 Views
tbl LAB_RNA 228 1
Started by SuperUser Account
If there is a value in tbl RNA higher than the upper limit (>750000 for example) you can’t describe this. For lower Limit there is -1. So in this case you have: rna_v : 750000, rna_ul: 750000. But you don’t see the real value is >750000.
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1 |
228 |
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0 Replies and 232 Views
tblNEWBORN_ABNORM - Information about abnormalities (7) 232 0
Started by SuperUser Account
Dear All
This is the seventh topic with discussions of tables related to pregnant women and pregnancy outcomes in view of potential inclusion of some of the tables/variables in the IeDEA data harmonization efforts.
Please see http://www.hicdep.org/wiki/Hicdep_1.100/TableNewbornAbnorm for the current version of this table.
BM suggests to consider the use of the key field
CHILD_ID Patient ID of the child
ABNORM_T Type of abnormality
plus the field
ABNORM_S...
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0 |
232 |
26 Nov 2015 12:00 AM |
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0 Replies and 240 Views
tblNEWBORN - Information about newborns(6) 240 0
Started by SuperUser Account
Dear All
This is the sixth topic with discussions of tables related to pregnant women and pregnancy outcomes in view of potential inclusion of some of the tables/variables in the IeDEA data harmonization efforts.
Please see http://www.hicdep.org/wiki/Hicdep_1.100/TableNewborn for the current version of this table.
BM suggests to consider the use of the key field
CHILD_ID Patient ID of the child
plus the fields
BRFEED_SD Breastfeeding start date
BRFEED_ED...
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0 |
240 |
25 Nov 2015 12:00 AM |
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0 Replies and 245 Views
tblDELIVERY_CHILD - Delivery information related to the child(ren) (5) 245 0
Started by SuperUser Account
Dear All
This is the fifth topic with discussions of tables related to pregnant women and pregnancy outcomes in view of potential inclusion of some of the tables/variables in the IeDEA data harmonization efforts.
Please see http://www.hicdep.org/wiki/Hicdep_1.100/TableDeliveryChild for the current version.
BM suggests to consider the use of the key fields
MOTHER_ID Patient ID of mother of child
CHILD_ID Patient ID of the child
plus the fields
DELIV_D D...
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0 |
245 |
24 Nov 2015 12:00 AM |
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0 Replies and 244 Views
tblDELIVERY_MUM - Delivery information related to the mother (4) 244 0
Started by SuperUser Account
Dear All
This is the fourth topic with discussions of tables related to pregnant women and pregnancy outcomes in view of potential inclusion of some of the tables/variables in the IeDEA data harmonization efforts.
Please see http://www.hicdep.org/wiki/Hicdep_1.100/TableDeliveryMum for the current version.
BM suggests to consider the use of the three key fields
MOTHER_ID Patient ID of mother of child
PREG_SEQ Sequence number of the pregnancy for the specified mot...
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0 |
244 |
23 Nov 2015 12:00 AM |
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0 Replies and 237 Views
tblPREG_OUT - Pregnancy outcome (3) 237 0
Started by SuperUser Account
Dear All
This is the third topic with discussions of tables related to pregnant women and pregnancy outcomes in view of potential inclusion of some of the tables/variables in the IeDEA data harmonization efforts.
Please see http://www.hicdep.org/wiki/Hicdep_1.100/TablePregOut for the current version.
BM suggests to consider the use of the three key fields
MOTHER_ID Patient ID of mother of child
PREG_SEQ Sequence number of the pregnancy for the specified mother
...
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0 |
237 |
22 Nov 2015 12:00 AM |
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0 Replies and 250 Views
tblPREG_OBS - Obstetrical problems during pregnancy (2) 250 0
Started by SuperUser Account
Dear All
This is the second topic with discussions of tables related to pregnant women and pregnancy outcomes in view of potential inclusion of some of the tables/variables in the IeDEA data harmonization efforts.
Please see http://www.hicdep.org/wiki/Hicdep_1.100/TablePregObs for the current version
BM suggests not to use this table at the moment.
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0 |
250 |
21 Nov 2015 12:00 AM |
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0 Replies and 254 Views
tblPREG - Pregnancy Discussion with IeDEA (1) 254 0
Started by SuperUser Account
Dear All
This is the first topic with discussions of tables related to pregnant women and pregnancy outcomes in view of potential inclusion of some of the tables/variables in the IeDEA data harmonization efforts.
Please see http://www.hicdep.org/wiki/Hicdep_1.100/TablePreg for the current version
BM suggests to consider the use of the two key fields
MOTHER_ID Patient ID of mother of child
PREG_SEQ Sequence number of the pregnancy for the specified mother
pl...
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0 |
254 |
20 Nov 2015 12:00 AM |
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1 Replies and 232 Views
Transition from Child to Adult 232 1
Started by SuperUser Account
The topic is currently discussed with the IAS initiative CIPHER. We propose to add the following additional fields to tblVIS:
CLINIC_TYPE: Type of clinic / service
1 paediatric
2 adolescent within paediatric care
3 adolescent within adult care
4 adolescent stand alone
5 adult
9 missing
SPEC_TYPE: Type of specialist providing care
1 paediatric
4 adolescent
5 adult physician
9 missing
TRANS_STAGE: Stage of tr...
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1 |
232 |
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0 Replies and 232 Views
HICDEP Release 1.90 232 0
Started by SuperUser Account
Dear all
We have just released HICDEP version 1.90. As always, you can find a PDF version attached.
Best regards, Raphael Fuchs
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0 |
232 |
19 Nov 2015 12:00 AM |
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3 Replies and 379 Views
Request for new ART_RS codes 379 3
Started by SuperUser Account
Dear all,
I got a request for additional codes to be included in ART_RS.
Those are:
4.1, Hypersensitivity reaction - Allergic reaction 4.2, Hypersensitivity reaction - Anaphylactic reaction
Any comments or suggestions from anyone
Casper
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3 |
379 |
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0 Replies and 244 Views
coding AIDS_defining conditions 244 0
Started by SuperUser Account
Dear all,
I received the following question from the PISCIS cohort.
' I am reviewing the coding of AIDS-defining conditions and for one of our centres, I have to extract from a long list of their ICD10 diagnosis codes, CDC-C and B conditions. For some this is easy (Kaposi) but for others (e.g. recurrent salmonella), it is less so or at least there are more choices to be made. Mulling over the best way of doing this I wondered for the sake of consistency whether you had any ...
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0 |
244 |
13 Oct 2015 12:00 AM |
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0 Replies and 235 Views
Stop-Reason: Regular treatment termination for non-ART drugs 235 0
Started by SuperUser Account
Hello
While for ART (currently) a regular treatment termination seems not possible, for other mediations (tblMED) this situation occurs quite frequently (e.g. HCV, antibiotic treatmens etc.).
I therefore suggest to add a separate code for regular treatment termination. Numbers which could be assigned are 92.5, 95.1, other suggestions
Best,
Bruno
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0 |
235 |
28 Sep 2015 12:00 AM |
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1 Replies and 255 Views
New table: tblCENTER 255 1
Started by SuperUser Account
We have adopted tblCENTER from IeDEA - Thanks to IeDEA for sharing!
This table contains information about the Center in general, such a geographical location, situation, level of care, population served and administrative dates.
Please review and contribute to the discussion.
Is the variable ADULTPED precise enough
Do we need additional administrative dates (e.g. related to censoring of data)
Best
Bruno
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1 |
255 |
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0 Replies and 236 Views
Reasons for stopping medication - new codes 236 0
Started by SuperUser Account
As we are also using the stop reasons for non-ART drugs we have to expand the current codes.
Two situations just were raised from the SHCS:
Risk for bone toxicity (osteoporosis)
Finished regular treatment (e.g. for other antibiotics)
Are there other situations you have encountered
Are you aware of an internationally accepted broader coding scheme
Thanks for your input
Bruno
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0 |
236 |
11 Jun 2015 12:00 AM |
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0 Replies and 238 Views
Country Code for Republic of Kosovo 238 0
Started by SuperUser Account
Dear all,
we have received a request concerning the country code for the Republic of Kosovo. So far we didn't define such a code, this is due to the fact that there doens't yet exist an official (ISO 3166-1) encoding for Kosovo. We have decided to wait until Kosovo is added to the ISO 3166-1 list, instead of define a code on our own.
Best wishes, Patrick
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0 |
238 |
04 May 2015 12:00 AM |
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2 Replies and 295 Views
Clinical events coding 295 2
Started by SuperUser Account
Hi
We have been looking at the case definitions for the clinical events coding (tblCEP). Our UK Register of HIV Seroconverters cohort does not systematically capture such detailed information as listed in the HICDEP case definitions. We ask physicians to report on whether the patient had, for example, 'liver disease' or 'diabetes', leaving it up to the clinician's interpretation, with a space for the clinician to write their own details alongside this in free text (usually qui...
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2 |
295 |
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1 Replies and 250 Views
GP120 sequence data 250 1
Started by SuperUser Account
I received the following email, which sparked this post:
I have a question about LAB_RES_LVL2 table. When I compile the GP120 sequence data, I have the co-receptor result (CCR5 or CXCR4) and the full positive rate (percentage number). In which of the cells of LAB_RES_LVL2 table should I insert these data
Now my question is as follows:
AS far as I can see this situation is not covered in the existing RES tables in HICDEP. I am not a bio-informatics person and have no...
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1 |
250 |
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1 Replies and 228 Views
tblART and tblMED 228 1
Started by SuperUser Account
Dear,
PLease find below a message from the FHDH cohort about misclassified treatment in tblMED and ART. Could we discuss this
Dear Monique,
The misclassified treatments in COHERE 2015's Merger MED and ART tables, are :
J05AF08 J05AF10 J05AF11 J05AF12
These are HBV antiviral treatments and not antiretroviral treatments. Therefore, they should be classified in MED table and not in ARV table
Best regards
Hana
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1 |
228 |
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2 Replies and 246 Views
tblART (see also message 147) 246 2
Started by SuperUser Account
Dear all,
Please find below a question from the PISCIS cohort:
'Some of our hospitals have started to dispense Cabotegravir (GSK-744) and I cannot find either an ATC or a HICDEP code for this. Is there one in the pipeline'
How do we code new (ART)medication not yet an ATC code assigned
Monique
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2 |
246 |
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1 |
219 |
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4 Replies and 213 Views
Causes of death codes specific for the TB-HIV study 213 4
Started by SuperUser Account
At CHIP we would like to have added the following 'Causes of death' codes specific for the TB-HIV study.
To add under: 01.1 (AIDS infection)
01.1.1 Tuberculosis
01.1.1.1 Pulmonary tuberculosis
01.1.1.2 Extrapulmonary TB
01.1.1.2.01 Pleura (isolated, without lungs involvement)
01.1.1.2.02 Lymphatic intrathoracic (isolated, without lungs involvement)
01.1.1.2.03 Lymphatic extrathoracic
01.1.1.2.04 Pericardia
01.1.1.2.05 Spine
01.1.1.2.06 Bone/joints...
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4 |
213 |
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3 Replies and 203 Views
Modification coding table ART 203 3
Started by SuperUser Account
Could the following treatment be added to the coding table for ART
J05AX12= Dolutegravir V03AX03= Cobistat
And the following coded be deleted from the table ART J05AE06 Lopinavir/Ritonavir (Kaletra) has been replaced by J05AR10 Kaletra/Aluvia (Lopinavir/Ritonavir)
Thanks,
Monique
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3 |
203 |
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2 Replies and 280 Views
Can we please add the following value to lab_u: 19=ng/mL 280 2
Started by SuperUser Account
Hello :)
For a hepatitis project in COHERE, we are using the lab-type 'AFP' (Alpha1 fetoprotein).
The unit most commonly used to measure this is ng/mL (nanograms per milliliter)
Can we please add the following value to lab_u: 19=ng/mL
Best Regards,
Rikke
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2 |
280 |
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1 Replies and 221 Views
DIS - opportunisticinfections and malignancies 221 1
Started by SuperUser Account
Hello
I had a request posed to me if we perhaps could put the text ' and malignancies' at the end of DIS description to make it clear that the opportunistic malignancies are here and not in the CEP table.
Best, Rikke
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1 |
221 |
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0 Replies and 243 Views
tblLAB_VIRO 243 0
Started by SuperUser Account
Hi,
In COHERE we have added to the LAB_VIRO the following two tests:
IGRA= interferon-Gamma Release Assay TST= Tuberculosis Skin Test or Mantoux test
and an additional unit
4=mm ( for the TST test)
Best, Monique
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0 |
243 |
23 Sep 2014 12:00 AM |
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0 Replies and 227 Views
tblBAS 227 0
Started by SuperUser Account
Hi,
In COHERE we added to the tblBAS to variable COUNTRY to record the country of care.
On the other hand we deleted the variable ORI_OTH, as with the introduction of the UN codes for region and country to code origin, the variable ORI_OTH became obsolete.
Best, Monique
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0 |
227 |
23 Sep 2014 12:00 AM |
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2 Replies and 205 Views
tblART and tblMED 205 2
Started by SuperUser Account
Hi everyone,
new drugs for HIV and HCV are to be expected within the next months or are already in use. Please consider them for HICDEP 1.8.
Best wishes Robert
tblART
J05AR12 Lamivudine and tenofovir disoproxil
J05AR13 Lamivudine, abacavir and dolutegravir
J05AR14 Darunavir and cobicistat
tblMED
HCV drugs already in use
J05AE14 Simeprevir
J05AX14 Daclatasvir
J05AX15 ...
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2 |
205 |
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0 Replies and 226 Views
HICDEP Release 1.80 226 0
Started by SuperUser Account
Dear all
A first version of the changelog to the upcoming HICDEP release 1.80 is now available.
If you have any remarks or would like to add any changes to this upcoming release, please use this thread or let me know via email.
The HICDEP version 1.80 is scheduled to be finalised in the beginning of october.
Best regards, Jens
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0 |
226 |
16 Sep 2014 12:00 AM |
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2 Replies and 194 Views
Suggested changes to Hepatitis-related codes in tblCEP 194 2
Started by SuperUser Account
Dear All
I had the chance to discuss the hepatitis codes from tblCEP with Massimo Puoti and Robert Zangerle. To improve the tool for an adequate clinical classification of hepatic liver diseases we suggest the following changes:
New type of event: Fibroscan IQR
In addition to the Fibroscan stiffness (CEP_ID='FIBS') with the elasticity value in CEP_V (CEP_ID='FIBS', CEP_SPEC=elasticity in KPa) we need to also collect the interquartile range (IQR) of the measurements. An ...
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2 |
194 |
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0 |
223 |
02 Sep 2014 12:00 AM |
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0 |
230 |
02 Sep 2014 12:00 AM |
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8 Replies and 252 Views
CoDe added some sub-codes 252 8
Started by SuperUser Account
Hello everyone.
CoDe has added some more specific sub-codes under point 22 and 23
22 Psychiatric disease (other causes)
22.1 Mental and behavioural disorders due to use of psychoactive substances (other than alcohol and intravenous opioids)
22.2 Schizophrenia, schizotypal and delusional Disorders
22.3 Mood /Affective disorders (Major depressive disorder, Bipolar disorder and other mood disorders)
22.4 Neurotic, stress-related and somatoform disorders (including a...
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8 |
252 |
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2 |
187 |
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4 |
193 |
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3 Replies and 199 Views
tblCANC 199 3
Started by SuperUser Account
Dear all,
tblCANC http://hicdep.org/wiki/Hicdep_1.80/TableCANC has been added. Feel free to look at the draft and comment your recommendations here.
Sebastian
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3 |
199 |
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1 Replies and 183 Views
Questions re: migrant status 183 1
Started by SuperUser Account
Dear colleagues
Following Julias presentation today here in Sitges, we need to discuss the addition of following variables to tblBAS:
Country of birth/Geographic origin (i.e. splitting the currently combined variable ORIGIN 'Nationality or region of origin of patient')
Year of arrival to host country if born abroad
Best,
Bruno
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1 |
183 |
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1 Replies and 190 Views
Proteinuria in HICDEP 190 1
Started by SuperUser Account
I noticed that not all proteinuria lab measurement made it into HICDEP 1.7. Could the following lab measurements be added to the HICDEP version 1.8
ACRA: Albumin Creatinin Ratio
PCRA: Protein Creatinin Ratio
PROT: Protein
Thanks,
Monique
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1 |
190 |
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3 Replies and 189 Views
tblLAB.lab_u 16=femtoliters 189 3
Started by SuperUser Account
Hi.
In COHERE 2014 merger we are collecting LAB_ID=MCV (Mean Corpuscular Volume). The standard unit of measurement of this is 'femtoliters'.
I would like to suggest to add this as LAB_U=16
(And the reason we want to add it as '16' is that in the latest COHERE SOP we have 13=µg/L, 14=mg/24h and 15=mg/mmol)
Best Regards, Rikke Brandt (chip)
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3 |
189 |
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2 Replies and 186 Views
HEIGH in tblBAS moved to additional field 186 2
Started by SuperUser Account
I'd like to move the variable HEIGH in tblBAS from a core field to an additional field. Many cohorts do not collect this information, so I think its best place is in the Additional fields section.
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2 |
186 |
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0 Replies and 218 Views
tblART - known to be off ART variable 218 0
Started by SuperUser Account
Hi All,
It is known that cART is the single most effective intervention to reducing morbidity and mortality in HIV infected individuals. It is therefore extremely important we accurately capture cART usage in our studies. For various reasons, individuals stop taking ART which can have serious consequences on their clinical outcomes. ART breaks are not well captured in HICDEP and can only be derived through ART stop and start dates. It is impossible to determine if the time between...
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0 |
218 |
09 Dec 2013 12:00 AM |
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3 Replies and 224 Views
Mapping: one to many in tblDIS 224 3
Started by SuperUser Account
Here is a real life problem to consider:
The HICDEP 'DIS_ID' field (used to store CDC class C OIs) has the code for TB but the problem is, if we export from our database we are going from something general in our database to something more specific in HICDEP. In our database, we store an AIDS defining illness under Events called 'Mycobacterium tuberculosis, any site (pulmonary or extrapulmonary)' and in HICDEP they have 'Mycobact. tuberculosis pulm.' and 'Mycobact. tuberculosis ...
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3 |
224 |
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5 Replies and 184 Views
Coding of causes of death 184 5
Started by SuperUser Account
In COHERE we have asked the cohorts to indicate what has been the source of information for coding the causes of death.
We identified 5 possible options:
1) Did not apply any method, just had the codes mapped into HICDEP/CoDe
2) Applied full Cause of Death (CoDe) protocol within own cohort
3) Used data received back from the ART-CC
4) Used data received back from DAD
5) A mixture of the above.
If the answer was “5) A mixture of the above”, we asked the cohorts to verify for ...
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5 |
184 |
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4 Replies and 199 Views
HICDEP 1.70 - Release Candidate 199 4
Started by SuperUser Account
Hi all
You can find the RC of the version 1.70 here.
The change log is included in the PDF. The new release consists of mainly small changes: Optional fields are added (regarding employment, education, smoking...), redundancies in the tblDIS coding were removed and tblAE was renamed to tblCEP.
In order to comply with the four week procedure prior to the next TC we propose to consider the enclosed 1.70 version as official release candidate and forward to the cohort data m...
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4 |
199 |
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1 Replies and 181 Views
tblLTFU - Additional fields 181 1
Started by SuperUser Account
The table LTFU contains additional variables to collect the ICD-10 coding for coding of causes of death, however I have learned that some cohorts do use the ICD-9 coding instead of ICD-10 coding, however there are no HICDEP variables to provide these ICD-9 codings. Could we add these variables to HICDEP
Thanks, Monique
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1 |
181 |
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1 |
171 |
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1 Replies and 163 Views
Additions to the Causes of Deaths in the CODE system 163 1
Started by SuperUser Account
I would like to add the following codes below code 4:
4 = Malignancy (other than 1.2 and 3, 3.1, 3.2)
4.101 = ALL - Leukaemia: Acute lymphoid
4.102 = AML - Leukaemia: Acute myeloid
4.103 = CLL - Leukaemia: Chronic lymphoid
4.104 = CML - Leukaemia: Chronic myeloid
4.109 = LEUK - Leukaemia: unspecified
4.03 = ANUS - Anus cancer
4.04 = BLAD - Bladder cancer
4.05 = BONE - Bone cancer
4.06 = BRAC - Brain cancer
4.07 = BRCA - Breast cance...
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4 Replies and 194 Views
Name of tblAE 194 4
Started by SuperUser Account
Hi everybody
In our last telephone conference, we noted that the name of tblAE may not be the best fit, as it contains not only adverse events, but also clinical procedures and non-adverse events.
Hence we propose to rename tblAE to tblCEP (Clinical Events and Procedures). To keep the column names consistent, we would rename AE_D, AE_ID, AE_SPEC to CEP_D, CEP_ID, CEP_SPEC (and do the same to the optional fields).
In the coding table of the field AE_ID (CEP_ID)(http://www...
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194 |
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1 Replies and 182 Views
CoDe: Two new subcategories 182 1
Started by SuperUser Account
I would like to suggest the addition of two subcategories for '08 - MI or other ischemic heart disease'
new codes:
08.1 - AMI
08.2 - Other ischemic heart disease
We need to distinguish between the two in DAD
Best regards, Rikke
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5 Replies and 197 Views
Additions to tblMED 197 5
Started by SuperUser Account
I would like to add a few Hep C drugs to tblMED please:
Download this table as CSV file Download this table as XML file
Codes (Extended ATC-Codes)
Other HIV-related drugs
J05AE12
Boceprevir (trade name Victrelis)
J05AE11
Telaprevir (trade names Incivek and Incivo)
Ashley
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197 |
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6 Replies and 196 Views
tblBAS SEROHOW codes 196 6
Started by SuperUser Account
In the DAD study we have a fourth option for the SEROHOW variable in tblBAS
4 = First pos HIV-1 test
I would very much like the 'First pos HIV-1 test' option as part of the SEROHOW variable. If this could be added to HICDEP 1.70 I would appreciate it.
I would suggest placing the 'Other' option just before 'Unknown' - In this case 8:
1 = Midpoint between last neg. and first pos. HIV-1 test
2 = Lab evidence of seroconversion
...
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196 |
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1 Replies and 180 Views
Cohere SOP versus HICDEP SOP 180 1
Started by SuperUser Account
Will the SOP of Cohere from last spring (2013) be intergrated into the HICDEP SOP My syntaxes are now based on Cohere (especially tblAE is very different now) but HICDEP hasn't been changed.
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186 |
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0 Replies and 232 Views
ethnic (Americas?) 232 0
Started by SuperUser Account
I think perhaps the ethnicity variable in BAS has one 'wrong' code. Looking at it - there is a category 'Americas' which correspond to one of the original origin codes. But I don't see how this can be an ethnicity.
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23 Apr 2013 12:00 AM |
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2 Replies and 172 Views
How do I actually download data? 172 2
Started by SuperUser Account
Folks,
I have spent some time learning the structure of your database and I think I understand it.
What I don't know how to do is to actually download data.
Can you give me some info on how to download data
Thanks so much for your time, KW
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172 |
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2 Replies and 171 Views
LTFU and Certainty of death's cause 171 2
Started by SuperUser Account
On the paper form for CoDe it is asked that the person give an indication of how certain the diagnosis is. This is writen as follows:
Certainty of Diagnosis:
Definite = 95-100 certainty,
Likely = 80-95 certainty,
Possible = 50-80 certainty
I propose adding optional fields in the tblLTFU that can capture this information, for those cohorts that have it.
suggested name: Death_RDC1, DEATH_RDC2 etc for as many DEATH_Rxx there ...
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171 |
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4 Replies and 183 Views
Small amendments thread 183 4
Started by SuperUser Account
Trying to use this thread for needed additional codes - thus only minor stuff that may not need a new thread each time.
First one up (emerging from a EuroSIDA site):
Cobas Ampliprep/Cobas TaqMan - HIV-1 test from ROCHE. - (Version 2.0)
Suggested code:
67 Cobas 2.0 Ampliprep/TaqMan
Honestly I'm getting confused about how these tests should be arranged/ordered/nested. Help would be most welcome...
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183 |
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7 Replies and 206 Views
LAB_ID duplicate tests 206 7
Started by SuperUser Account
The LAB_ID 'WBC' and 'LEUK' are referring to the same blood test to measure the number of white blood cells. Please delete 'LEUK'from the coding list.
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206 |
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3 Replies and 188 Views
QA check changes so far 188 3
Started by SuperUser Account
I've updated the QA checks with issues that have already been resolved (and a few cases of duplicate codes), here's a quick overview of the changes since 1.60:
Deleted
Tablename
WithinTable or CrossTable
Error Code
Description of inconsistency
Study Specific
HICDEP
tblLAB
WithinTable
LW006
Missing LAB_LLN
YES
tblLAB
WithinTable
LW007
Missing L...
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3 |
188 |
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1 Replies and 177 Views
LAB_ID 177 1
Started by SuperUser Account
Could anyone please explain me the difference between
ALP Alk.P.tase
APT Alk. Phosphatate (Is this a spelling error)
Which one is phosphatase alkaline (ALP or APT)
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30 Jan 2013 12:00 AM |
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3 Replies and 195 Views
-- 195 3
Started by SuperUser Account
I would like some additions to the list of AE_SPEC in relation to non-AIDS Defining Malignancies (NADM) http://hicdep.org/wiki/Hicdep_1.60/TableAe/FieldAeSpec
BONE=Bone cancer
BRAC=Brain cancer
ESOP=Esophagus cancer
GALL=Gallbladder cancer
GYCA=Gynaecologic cancer
HENE=Head and neck (incl. face) cancers
PANC=Pancreas cancer
OTH=Non-Aids Defining Malignancy: Other
They do not conflict with already existing AE_SPE...
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4 Replies and 185 Views
Code for Unknown Origin 185 4
Started by SuperUser Account
Hi All,
I'm starting the CASCADE data checks and realized that we do not have an unknown coding for Origin in tblBAS. There currently is not a 99 UN code, but I'm hesitant to use this for Unknown as the UN codes we're using span roughly 0-1,000. We could use 999 Does anyone have thoughts
Ashley
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5 Replies and 190 Views
Error Checks that I am not sure are right 190 5
Started by SuperUser Account
Hello all I am currently spending my time making sure that the Quality Assurance Checks in the HIV DDM tool reflect the HICDEP 1.60 error-codes. In this more detailed process of going through the tables I noticed some odd things. for tblLAB_VIRO Error Code LVW001 for tblLAB_VIRO is in fact NOT a 'Within-Table' check as it is defined as 'Patient has no record in BAS' - I would suggest renaming this check 'LVC001' and moving it to the 'Cross-Table' section of the qa checks. I am n...
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190 |
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1 Replies and 184 Views
LAB_CD4: QA error coded CW009 184 1
Started by SuperUser Account
LAB_CD4
Could anyone tell me how you would program the following QA check:
CW009 -CD4 counts spike up or down suddenly (large change in less than a year)-.
How would you qualify 'spike uu or down suddenly'
Thanks,
Monique
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184 |
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10 Replies and 200 Views
Ability to store QA check results 200 10
Started by SuperUser Account
Hello
On behalf of the D:A:D datamanagers I would like to suggest a format for Error checks and the result on running them. And also a possibility of capturing feedback such as 'verified' for outliers.
A QA check table should include:
'Error Code' - the QA-check Identifier (e.g. 'VW004' for the weight out of acceptable range)
the 'unique identifier' from the table that triggered the error (e.g. PATIENTVIS_D for tblVIS)
And the 'Verified' field to allow for ...
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1 Replies and 180 Views
LAB_CD8 180 1
Started by SuperUser Account
Would it be possible to create a table LAB_CD8 in HICDEP 1.70 based on the table LAB_CD4 in HICDEP 1.60 (and previous versions)
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180 |
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224 |
10 Jan 2013 12:00 AM |
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2 Replies and 179 Views
tblMED and tblART: define category of medication/treatment 179 2
Started by SuperUser Account
At the HICDEP version 1.60 it is described that the tblMED holds type, date , value and unit for other HIV related medicines. I think we should change this into next version into tblMED holds type, date, value and unit for medication/treatment.
Moreover I would like to introduce a variable (e.g MED_CAT) to define a category of medication/treatment e.g. HIV, HBV and HCV.
I would also suggest to introduce a similar variable in the tblART to define a category of medication/treatme...
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179 |
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1 Replies and 178 Views
tblVIS new fields 178 1
Started by SuperUser Account
For HICDEP 1.70 I would like to suggest the inclusion of smoking status/smoking history and family history of AMI.
FAM_Y = 'First degree relative with AMI before age 50' (coded yes/no/unknown)
SMK_Y = 'Is the patient currently a smoker' (coded yes/no/unknown)
And optionally the smoking history:
SMD_Y = 'Was the patient ever a smoker' (coded yes/no/unknown)
This provides valuable insight into some of the cardiovascular risks of the individu...
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178 |
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0 Replies and 224 Views
Fixed dose, generics and trade names 224 0
Started by SuperUser Account
Dear all,
As discussed in the recent meetings, there is interest in capturing data on fixed dose drugs and generics by recording trade names.
Please share any comments you have on this topic, e.g. regarding how this should relate to the current tables tblMED and tblART, how trade names should be coded, any issues with capturing this data, etc.
Kind regards, Mark
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27 Nov 2012 12:00 AM |
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0 Replies and 219 Views
Fixed dose, generics and trade names 219 0
Started by SuperUser Account
Dear all,
As discussed in the recent meetings, there is interest in capturing data on fixed dose drugs and generics by recording trade names.
Please share any comments you have on this topic, e.g. regarding how this should relate to the current tables tblMED and tblART, how trade names should be coded, any issues with capturing this data, etc.
Kind regards,
Mark
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219 |
27 Nov 2012 12:00 AM |
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0 Replies and 203 Views
changes to hicdep 203 0
Started by SuperUser Account
Discussions between CASCADE and COHERE lead to the inclusion of a few new variables in tblBAS in hicdep:
tblBAS - Basic clinical, background and demographic information
Field name
Format
Description
RECART_D
yyyy-mm-dd
Date ART started
LTART_D
yyyy-mm-dd
Date last assessed for ART. If started ART, last date known to be on ART, or if not on ART, last date ART free.
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16 Nov 2012 12:00 AM |
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0 Replies and 217 Views
HICDEP 1.60 released 217 0
Started by SuperUser Account
HICDEP 1.60 released ¶
HICDEP 1.60 has been released as of 23 October 2012. See the ChangeLog for a list of changes since version 1.50.
The online version is accessible via http://www.hicdep.org/wiki/Hicdep_1.60 while a PDF printout can be downloaded from http://www.hicdep.org/raw-attachment/wiki/WikiStart/HICDEP_1.60.pdf.
If you have questions or comments, do not hesitate to contact adminhicdep.org.
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23 Oct 2012 12:00 AM |
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5 Replies and 191 Views
HICDEP 1.60 release candidate 191 5
Started by SuperUser Account
After a few more changes in the last week, the HICDEP 1.60 specification is now in release candidate state. The PDF has been updated.
To reiterate, the release process is as follows:
WP4 members should forward the release candidate to any data managers or researchers they know who might have valuable feedback.
As there is no TC scheduled, WP4 members should reply to this discussion with an acknowledgement of the changes, whether any issues are found or not.
In 3 ...
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0 Replies and 201 Views
HICDEP 1.60 changes 201 0
Started by SuperUser Account
As discussed in the last TC, I have updated the ChangeLog to describe the HICDEP 1.60 changes.
Pending a few minor issues, I will issue a release candidate next week, including a downloadable PDF.
Once the release candidate is out, the release process will roughly follow the ReleaseProcess outlined by Simon:
WP4 members should forward the release candidate to any data managers or researchers they know who might have valuable feedback.
As there is no TC scheduled, WP4 me...
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19 Sep 2012 12:00 AM |
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0 Replies and 302 Views
Coding Table for HCV geno-/subtypes 302 0
Started by SuperUser Account
Dear All
Thank you for commenting on the HCV geno-/subtype draft table for HICDEP 1.60
Coding Table for HCV geno- and subtypes:
From http://www.hepatitis-central.com/hcv/genotype/explained.html
Classifications
The most commonly used classification of Hepatitis C virus has HCV divide...
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302 |
28 Aug 2012 12:00 AM |
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1 Replies and 163 Views
coding of HIV subtypes and CRFs 163 1
Started by SuperUser Account
Dear all,
Margaret May proposed a unified encoding for HIV subtypes and CRFs. This concerns the field SUBTYPE of table tblLAB_RES. I forward the document on her behalf:
ART-CC has an approved concept sheet to look at prognosis by subtypes. We have looked at the subtype data in the current COHERE database and have found that there is no standardisation of terminology for subtypes and CRFs. We would like to pro...
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3 Replies and 238 Views
New variables to add to tblBAS in Hicdep 1.6New variables to add to tblBAS in Hicdep 1.6 238 3
Started by SuperUser Account
tblBAS - Basic clinical, background and demographic information
The current Ethnicity variable is catered to an American audience. COHERE and CASCADE both agree this variable should be re-evaluated and re-formatted so it can be universal. Additionally, CASCADE does not collect Ethnicity in this way, as it is not relevant to our cohorts. We suggest there to be a further discussion on Ethnicity and to invite relevant individuals to this discussion. Please sug...
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238 |
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1 Replies and 169 Views
coding of adherence data 169 1
Started by SuperUser Account
Dear all,
Margaret May proposed a coding for adherence data (self-reported as well as based on prescription refill). I forward the document on her behalf:
Please see attached discussion document which details the current data ART-CC have received on adherence. We think including prescription refill data in HICDEP would not be problematical. However, self - report adherence questionnaires are not stand...
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169 |
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4 Replies and 220 Views
SES - Educational level 220 4
Started by SuperUser Account
Dear all,
With regard to the socio-economic status (SES) variables, I'd like to propose the following encoding for the educational level:
Field name
Format
Description
EDU_LVL
character:
0 = Pre-primary...
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220 |
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5 Replies and 176 Views
HCV Update 176 5
Started by SuperUser Account
Part of work package 3 (task 3.9) indicates commitment to exploring Hepatitis C. To carry out this work, more HCV data needs to be collected, in particular HCV tretment, HCV genotype and subtype. I'm suggesting we add a HCV table to HICDEP with similar specification as tblART. Please see below for my version of the proposed table.
I also would like to suggest adding two fields to tblLAB_VIRO, namely HCV geotype and HCV subtype.
tblHCV - Hepatitis C treatm...
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176 |
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2 Replies and 180 Views
Rationale for inclusion of occupational status within datasets for WP4 180 2
Started by SuperUser Account
As discussed at the TC of May, 29th, we would like to invite the cohorts to comment on the following rational:
Employment is a major factor in maintaining income levels and living conditions, especially among persons with long-lasting chronic diseases. In addition, unemployment has been shown to be an independent predictor of morbidity and mortality both in the general population and among HIV-infected people.
...
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0 Replies and 230 Views
HCV in tblLAB_RES 230 0
Started by SuperUser Account
Following the discussion of the February TC, I went ahead and made the changes such that tblLAB_RES and its level-specific subtables may also encode HCV resistance test results. It turned out to require a few changes we didn't anticipate in the first place, so I'd like to encourage you review the current draft.
As discussed, I added a variable VIRUSTYPE to tblLAB_RES which allows to distinguish HCV and HIV entries.
However, this change also impli...
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11 Apr 2012 12:00 AM |
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0 Replies and 267 Views
ISCED 2011 267 0
Started by SuperUser Account
Dear all,
I would just like to note that there has been a revision of the International Standard Classification of Education, the ISCED 2011. Because there seem to be some significant changes in the codings, I have explicitly referenced the 1997 standard in the EDU_LVL variable that was used in the proposal. The correspondence between codings of the top-level codes between the 1997 and 2011 standards is shown in table 19 on page 66 of http://www.uis.unesco.org/Education/Documents/UNESCO_GC_36...
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267 |
13 Sep 2011 10:56 AM |
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0 Replies and 230 Views
HICDEP 1.50 released 230 0
Started by SuperUser Account
Announcement: HICDEP 1.50 released
HICDEP 1.50 has been released on Sep 13 2011. This version features:
the new pediatric tables: tblPREG, tblPREG_OBS, tblPREG_OUT, tblDELIVERY_MUM, tblDELIVERY_CHILD, tblNEWBORN and tblNEWBORN_ABNORM.
a new table tblSAMPLES which holds information regarding sample storage.
an updated list of drugs tblART
The document is accessible via http://www....
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230 |
13 Sep 2011 12:00 AM |
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0 Replies and 219 Views
WP4 online survey tool - new version (30-jul-2011) 219 0
Started by SuperUser Account
Please check the latest version of the online survey tool for task 4 of EuroCoord Work Package 4 (Data Inventory).
I think that all changes suggested during the last TC have been implemented except for the 'Finalize' button which will be inactive until we feed the database with a list of IDs and Passwords for the data managers.
The list with the lab tests has remained almost unchanged since it's an exact copy of what's in HICDEP right now. I discussed the c...
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219 |
30 Jul 2011 12:00 AM |
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0 Replies and 199 Views
WP4.4: New version of survey tool 199 0
Started by SuperUser Account
Dear all,
Please check the current version of the online survey tool for task 4 of EuroCoord Work Package 4 (Data Inventory).
Changes compared to the previous version:
Less summary statistics
Added question for possible selection bias issues
Added set of questions for items not currently included in HICDEP
Modified (less strict) way of asking about overlaps
Drop-down lists replaced by radi...
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199 |
17 Jun 2011 12:00 AM |
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3 Replies and 169 Views
HICDEP release process 169 3
Started by SuperUser Account
Hello everyone,
As Charlotte and Jesper pointed out at the last TC, the release process for new HICDEP versions is currently undocumented. I'm about to change that, here's what I came up so far:
roughly every year, the following happens:
4 weeks before a WP4 TC, I post a message to the discussion board stating that the version currently visible in the wiki is now considered a candidate for release as-is
WP4 members forward the message...
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2 Replies and 180 Views
Paediatric tables / more design issues 180 2
Started by SuperUser Account
Hello everybody,
I have discovered another issue with the pediatric tables and need your input to fix it the right way.
Problem: tblPREG had only MOTHER_ID as primary key. This implies that a woman can only get pregnant once.
Proposed fix: Add MENS_D (the date of the last known menstrual period) to tblPREG's primary key. This allows women to get pregnant multiple times. However, it requires also adding the MENS_D field to all tables which reference records in tblPREG, i.e. tblPREG...
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3 Replies and 177 Views
new variables for tblBAS, tblLTFU, tblLAB_VIRO 177 3
Started by SuperUser Account
Hello everyone,
Sara Lodi has sent me a list of variables which CASCADE currently collects but which are not contained in the HICDEP standard. Some of them could be interesting to add, especially if other collaborations also collect them.
Questions to discuss are:
Which variables are commonly collected and therfore should be added to HICDEP
Should the variable be marked as additional or mandatory
Should more/other coding options be added for ca...
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177 |
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0 Replies and 207 Views
Spam Bot Attacks 207 0
Started by SuperUser Account
Hello everyone,
As you may have noticed, the discussion board has become more popular lately, at least concerning robots posting spam messages.
In order to combat this abuse, only users logged in can post messages to the forum for the time being. I will investigate whether we can use a captcha or another suitable mechanism in the future.
I apologise for the troubles caused.
Kind regards,
Simon
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207 |
01 Jun 2011 12:00 AM |
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0 Replies and 206 Views
tblSAMPLES - sample types 206 0
Started by SuperUser Account
Hi everyone,
At the last TC, Yacine raised the issue that the sample types currently provided in tblSAMPLES is rather marginal. I agree with this, but it's hard to come up with a sensible list by myself, without knowing what other cohorts collect, so here is my question:
Do you know any types of samples (be it blood or other materials) that the cohorts collect but are not listed in tblSAMPLES
If yes, please let us know :)
Kind regards,
Simon
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206 |
09 May 2011 12:00 AM |
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1 Replies and 170 Views
Website moved to new infrastructure 170 1
Started by SuperUser Account
The Quality Assurance check named ATC006 (AllTables/CrossTable/'Any fields not coded as coding lists on the table definition') I think needs to be more specific for the field being tested.
I was sitting with the DAD checks for the ART table– and we test both ART_RS and ART_ID for valid codes according to the table definitions. If a given record fails at least one of these checks then the error code ‘ATC006’ would not indicate which field failed.
Perhaps it could b...
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2 Replies and 172 Views
Task 4.4: Data Inventory Survey 172 2
Started by SuperUser Account
Here is a temporary link ( http://195.134.113.76:8000/test3/survey.php ) for the Data Inventory Survey system I and Sara were working on.
The survey system is not complete; you will see there is a Tab labeled 'Data Collection (Non-HICDEP) which, at the moment, is empty but I'm about to start filling it with actual questions regarding items that are not yet included in the HICDEP tables. The page is hosted at my personal computer so forgive the strange looking link. Things will be prettier at...
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172 |
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2 Replies and 163 Views
Suggestions/Questions for HICDEP Quality Assurance Checks 163 2
Started by SuperUser Account
The Quality Assurance check named ATC006 (AllTables/CrossTable/'Any fields not coded as coding lists on the table definition') I think needs to be more specific for the field being tested.
I was sitting with the DAD checks for the ART table– and we test both ART_RS and ART_ID for valid codes according to the table definitions. If a given record fails at least one of these checks then the error code ‘ATC006’ would not indicate which field failed.
Perhaps it could b...
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163 |
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13 Replies and 230 Views
Paediatric tables / design issues 230 13
Started by SuperUser Account
Hi everybody,
I am currently including the paediatric tables (tblDELIVERY, tblNEWBORN, tblPREG, tblPREG_OBS and tblPregOut) into the HICDEP 1.50 draft. You can see the status quo in the above wiki articles.
One thing standing out to me is that they are not designed in a relational way. E.g. tblNEWBORN basically consists of 28 fields, a boolean and a free-text character field for every problem that can occur. This is ok if the data is recorded and fed into the database only once al...
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0 Replies and 211 Views
README 211 0
Started by SuperUser Account
Welcome to HICDEP's discussion board
This board is a place to discuss changes in the HICDEP draft for a specific table/field or just the general format. Note that anyone is allowed to participate in the discussion. Inappropriate content will be deleted by the moderators without further notice.
You can subscribe to individual topics that you are interested in or the whole forum. Once subscribed, the discussion board will notify you via email about new topics or answers. Any act...
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31 Jan 2011 10:27 AM |
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0 Replies and 60 Views
Workshop in Paris - 6-7/12 Save the dates 60 0
Started by SuperUser Account
The next workshop of the Eurocoord WP3 Methodology group will be organized in Paris Thursday/Friday 6-7th December 2012.
6th of December: Course by Cecile Proust-Lima on Latent Class Model
7th December: Workshop.
R Thiébaut
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01 Jan 2000 12:00 AM |